Research Material

The Research Materials & Presentation Data has been added below:


C Heeney and A Smart, ‘Building and maintaining consensus around the use of genetic databases’  ESRC Centre for Economic and Social Aspects of Genomics, London, 26–28 March 2006.

C Heeney, ‘Evaluation of genetic services’ Genomics and Society: Towards a Robust Science, CESAGen and Centre for Society and Genomics Annual Conference, Amsterdam, 20 April 2006.

C Heeney, ‘Privacy, the census and the trust gap: the role of liberal political theory’ British Sociological Association Conference, Harrogate, 22 April 2006.

C Heeney, ‘Governing genetic databases’ Mt Sinai/King’s College Consortium, King’s College London, 25 April 2006.

C Heeney, ‘Governing genetic databases’ ESRC Genomics Network Capacity Building Workshop, Edinburgh, 9 May 2006.

J Kaye, ‘Regulating biobanks – what are the issues?’ Norfa/Norforsk course ‘Rethinking the Limits of Autonomy’ Sandhamn, Sweden, 11 June 2006.

J Kaye, ‘Data and samples everywhere – but what about informed consent?’ Rethinking the Limits of Autonomy, VIII Annual Symposium on Biomedicine, Ethics and Society, Sandhamn, Sweden, 13 June 2006.

C Heeney, ‘Some empirical reflections on ethical issues around the UK Census’ Association of Research Centres in the Social Sciences (ARCISS) annual conference, Manchester, 16 June 2006.

J Kaye, ‘Is consent everything?’ Social and Legal Aspects of Collecting, Storing and Owning Human Tissue, ESRC Genomics Forum Policy Meeting, London, 28 June 2006.

C Heeney, ‘Privacy and confidentiality in statistical research’ ESRC Methods Festival, Oxford, 18 July 2006.

C Heeney, ‘Genetic databases and the assessment of public health benefits’ British Medical Sociology Conference, Edinburgh, 14–16 September 2006.

J Kaye, ‘Networking and Sharing Genomic Resources – A Legal Quagmire?’ 2020 Vision: Variation and Function in the Human Genome, Genome Canada International Conference, Québec City, 26–27 October 2006.

C Heeney, ‘What is it like to be a researcher in sociology and genetics?’ British Council Science in Schools Programme, Toulouse, France, 29 November 2006.

J Kaye, ‘Sharing data and samples in Europe – a legal perspective’ ESF/EMRC Strategic Workshop for a Science Policy Briefing on ‘Population Survey and Biobanking’, Amsterdam, 7–8 December 2006.

SMC Gibbons and J Kaye, ‘Mapping the regulatory framework for biobanks in England and Wales’ ESRC Centre for Genomics in Society (Egenis) International Conference 2007, Governing Genomics – Interdisciplinary Perspectives on the Regulation of the Biosciences, Exeter, 25–27 January 2007.

J Kaye, ‘Developing a global regulatory framework for biobanks’ ESRC Centre for Genomics in Society (Egenis) International Conference 2007, Governing Genomics – Interdisciplinary Perspectives on the Regulation of the Biosciences, Exeter, 25–27 January 2007.

C Heeney, ‘Building and maintaining consensus around genetic databases’, Mount Sinai Conference, New York, 17–20 April 2007.

J Kaye, ‘What are the legal obligations of clinicians regarding shared genetic information?’ – GELS Workshop, Nowgen, Manchester, 9 May 2007.

J Kaye, ‘Networks within networks – how do we achieve international harmonisation for biobanks?’ Opening Address, P3G Annual Conference, Montreal, 21 May 2007.

J Kaye, ‘The legal issues associated with networking biobanks’ – Biobanks: Essential Resources for Translational Research, EUROCAN Plus, Lyon, France, 8 June 2007.

C Heeney, ‘Doing the “right” thing: privacy and UK census’, European Statistical Research Association Conference, Prague, 25–29 June 2007.

J Kaye, ‘Benefit-sharing and biobanking’ – Genetics and Justice Conference, University of Oxford, Oxford, 2-3 July 2007.

Future presentations

‘The legal issues surrounding biobanking within Europe’ – Biobanks: Current Bioethics and Organizational Issues, EuroBIO, Lille, France, 27 September 2007.

Poster Presentations

C Heeney, 4th DNA Sampling Conference, Montréal, 4–7 June 2006.

C Heeney, British Sociological Association Conference, Amsterdam, 21 April 2006.

C Heeney, Consortium for Post Genomic Science Conference, Manchester, 22–24 March 2006.

Some additional reading material can be located via the 2 resources listed below.

The Department Of Genetics at Cambridge University

Functional Genomics at Oxford University